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Right how to explain where I am in my life after 3 years not being on this site.
#11
Ah I'm not that $%@£ yet, I'm not planing on giving up quite yet lol!!

I have becker muscular dystrophy Becker muscular dystrophy is an inherited disorder that involves slowly worsening muscle weakness of the legs and pelvis.
Causes

Becker muscular dystrophy is very similar to Duchenne muscular dystrophy, except that it gets worse at a much slower rate.

The disorder is passed down through families (inherited). Having a family history of the condition raises your risk.

Becker muscular dystrophy occurs in approximately 3 - 6 out of every 100,000 males. It is less common than Duchenne muscular dystrophy.
Symptoms

Females rarely develop symptoms. Males will develop symptoms if they inherit the defective gene. Symptoms usually appear in boys at about age 12, but may begin later.

Muscle weakness of the lower body, including the legs and pelvis area, slowly gets worse, causing:

Difficulty walking that gets worse over time; by age 25-30 the person is usually unable to walk
Frequent falls
Difficulty with running, hopping, and jumping
Loss of muscle mass

Muscle weakness in the arms, neck, and other areas is not as severe as in the lower body.

Other symptoms may include:

Breathing problems
Cognitive problems (these do not get worse over time)
Fatigue
Loss of balance and coordination

Info from http://www.nlm.nih.gov/medlineplus/ency/...000706.htm
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#12
Before you ask lol, I have no problems down stair lmao x
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#13
Btw I came out to someone today at work, though it was my last day there, but it felt good, in a strange way.
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#14
hia sweetlad2010

I noticed you mentioned becker muscular dystrophy gets worse at a sower rate than duchenne, which is the condition I have and I'm actually already at the point of not being able to walk ( I have been since I was 8 or 9) and you don't seem to be at that point so I thought I'd let you know that if you wanted someone to talk to who's been through something similar, maybe I could help.

once I get to 10 posts I could send you my email or phone number if you wanted Confusedmile:

i know it probly seems abit random that im offering to help when I don't know you but I know how hard it can be and how alone it used to make me feel.
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#15
sweetlad2010 Wrote:Ah I'm not that $%@£ yet, I'm not planing on giving up quite yet lol!!

I have becker muscular dystrophy Becker muscular dystrophy is an inherited disorder that involves slowly worsening muscle weakness of the legs and pelvis.
Causes

Becker muscular dystrophy is very similar to Duchenne muscular dystrophy, except that it gets worse at a much slower rate.

The disorder is passed down through families (inherited). Having a family history of the condition raises your risk.

Becker muscular dystrophy occurs in approximately 3 - 6 out of every 100,000 males. It is less common than Duchenne muscular dystrophy.
Symptoms

Females rarely develop symptoms. Males will develop symptoms if they inherit the defective gene. Symptoms usually appear in boys at about age 12, but may begin later.

Muscle weakness of the lower body, including the legs and pelvis area, slowly gets worse, causing:

Difficulty walking that gets worse over time; by age 25-30 the person is usually unable to walk
Frequent falls
Difficulty with running, hopping, and jumping
Loss of muscle mass

Muscle weakness in the arms, neck, and other areas is not as severe as in the lower body.

Other symptoms may include:

Breathing problems
Cognitive problems (these do not get worse over time)
Fatigue
Loss of balance and coordination

Info from http://www.nlm.nih.gov/medlineplus/ency/...000706.htm

That's a lot to deal with, Marc, I think you are very brave. I know you have to put up with it, but it's still very brave. Bighug
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#16
You guys have our support and regardless what anyone has on ere we are the kinda community which is ideal in a world like today
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#17
tommy53 Wrote:hia sweetlad2010

I noticed you mentioned becker muscular dystrophy gets worse at a sower rate than duchenne, which is the condition I have and I'm actually already at the point of not being able to walk ( I have been since I was 8 or 9) and you don't seem to be at that point so I thought I'd let you know that if you wanted someone to talk to who's been through something similar, maybe I could help.

once I get to 10 posts I could send you my email or phone number if you wanted Confusedmile:

i know it probly seems abit random that im offering to help when I don't know you but I know how hard it can be and how alone it used to make me feel.

OMG I totally didnt see your post to now, if your still about give me a shout I really want to talk to you??
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#18
I dont feel as lonely as before. Meeting a few guys and that at the moment (you know who you are lol :tongueSmile.

Its early days atm, but fingers crossed lol!!
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#19
tommy53 Wrote:hia sweetlad2010

I noticed you mentioned becker muscular dystrophy gets worse at a sower rate than duchenne, which is the condition I have and I'm actually already at the point of not being able to walk ( I have been since I was 8 or 9) and you don't seem to be at that point so I thought I'd let you know that if you wanted someone to talk to who's been through something similar, maybe I could help.

once I get to 10 posts I could send you my email or phone number if you wanted Confusedmile:

i know it probly seems abit random that im offering to help when I don't know you but I know how hard it can be and how alone it used to make me feel.


PM sent mate xx
Reply

#20
*cuddles marc*
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